So I'm here, online, feeling pretty good. Got to the hospital at 8:45 this morning. Talia was sad to say goodbye to me which made for a hard morning. She said on the way to drop her off, "I don't want you to change more Mommy" and that of course broke my heart. But she was OK once I left and I got a great video clip of her and Minna together while I was sitting in my chemo chair that made me happy, so thank you Sue for sending it!
My infusion started with some difficulty starting my IV - three attempts before they got it right. I jinxed it by asking all about how my veins were going to withstand weekly poking for 3 months and Cherie, the nurse, who I love, said "oh you have great veins, nothing to worry about" and lo and behold, she had to get another nurse to try. So that took 40 minutes, and then they started the IV of all the premeds - decadron and benadryl and one other antihistamine. Apparently with Taxol there is a high risk of anaphylaxis reaction (you stop breathing!) and the antihistamine helps to counteract that. But of course with that, comes some side effects and mine were heavy sleepiness, dizziness and nausea. The scrip was too strong for me and I wound up dry heaving once. So next time they will lower the dose. After 40 minutes of that, they started the Taxol. and Cherie literally sat there staring at me for 20 minutes while they s-l-o-w-l-y dripped the first of the taxol into my body. Any sign of trouble breathing or a myriad of other symptoms, they would stop the IV and flush my body. I seemed to do fine so they sped up the IV and left me for another hour while it did it's job. Jason was with me for most of this, but had to leave to go to work and my mom came a while later to pick me up and take me home. I slept for an hour and a half and woke up hungry and once I ate I felt much better. Here I am now, feeling mostly normal. I just hope tomorrow brings more of the same. Oh, and I also got the H1N1 shot today. Big day for my poor little body.
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Hi jen,
ReplyDeleteGlad that it's going well...You are a very strong person! Talia had good day at school. She worked on a blue print of her house,finger painted, hung out with Maya at the science table, and played with Casey and Elise during outside time. She did come over to me a few times for hugs, but was in good spirits!
My thoughts are with you!
Marlene
Thinking of you today, hope you continue to fare well - the Kings
ReplyDeleteYes, thinking of you constantly, Jen. You are right...your poor little body has taken quite a tortuous few months. It's a good thing your strong and beautiful mind along with your incredibly loving family has been able to somewhat counteract all that. Love ya. --Judy
ReplyDeleteHi, Jen- Thinking of you with your first round of Taxol. Flu shot and chemo is rough...that was my roughest weekend. Hope you're holding up!
ReplyDelete-Ani